Breast Investigators Organization Members
Breast Cancer Treatment Resources
Treatment Options
American College of Radiology
http://www.acr.org
Information on current radiation therapy treatment options.
American Society of Clinical Oncology (ASCO)
http://www.cancer.net/
Treatment guidelines and information on treatment options.
American Society of Plastic and Reconstructive Surgeons http://www.plasticsurgery.org/
Information on breast reconstruction.
Food and Drug Administration (FDA) Consumer Information on Breast Implants
http://www.fda.gov/ Information on breast implants.
Be a Survivor
http://beasurvivor.com
An interactive guide to breast cancer treatment that guides and empowers.
Breast Cancer DIY
http://www.breastcancerdiy.com
Created by women with Breast Cancer, to empower, support, and provide information to all breast cancer survivors, regardless of gender or ethnic background.
Breast Cancer Info Guide
http://www.breastcancer-infoguide.com
The breast cancer info guide includes symptoms of breast cancer, treatment procedures such as radiotherapy, chemotherapy, and surgery along with causes, diagnosis, prevention, screening, and risks associated with it.
Oncolink
http://www.oncolink.org/
OncoLink's blogs gives our readers a chance to react to and comment on key cancer news topics and provides a forum for OncoLink Experts and readers to share opinions and learn from each other
National Breast Cancer Coalition
http://www.stopbreastcancer.org/
The nation's largest breast cancer advocacy group with hundreds of member organizations and tens of thousands of individual members.
Treatment Issues Specific to Various Demographic and Interest Groups
Discussion of concerns specific to women of different ages, racial and ethnic groups with breast cancer or cancer in general.
Young Survival Coalition (YSC)
http://www.youngsurvival.org
Started by three under-40 women in New York City who were diagnosed with breast cancer, the YSC is dedicated to the concerns and issues that are unique to young women with breast cancer.
Triple Negative Breast Cancer Foundation
http://www.tnbcfoundation.org/
The mission of the foundation is to raise awareness of triple negative breast cancer and to support scientists in their effort to determine definitive causes of triple negative breast cancer so that effective detection, diagnosis, prevention and treatment can be pursued and achieved. Depending on its stage of diagnosis, triple negative breast cancer can be extremely aggressiveand more likely to recur and metastasize than other subtypes of breast cancer.
I’m Too Young For This
http://stupidcancer.com/
An organization focused on ending isolation, improving quality of life and providing meaningful survivorship for young adults affected by cancer.
Imaginis.com
http://imaginis.com
Provides in-depth information on breast cancer and related women's health issues, explaining complicated medical terms in everyday language to assist you in making informed decisions on prevention and treatment.
Cancer and Careers
http://www.cancerandcareers.org/
Provides a comprehensive website and free publications in English and Spanish as well as a series of support groups and educational seminars for employees with cancer, their employers, coworkers and healthcare providers.
Mothers Supporting Daughters with Breast Cancer http://www.mothersdaughters.org
Unique resource for mothers looking for support and guidance in helping their daughters deal with breast cancer. The site provides a way to connect with other mothers who have been there.
iVillage
http://forums.ivillage.com/
The Internet for Women, a leading women's media company and the number one women's community online.
Pink-Link
http://www.pink-link.org
A free service for women affected by breast cancer. Women can connect with other women with similar breast cancer issues using the search capabilities of their innovative online database, or create a personal journal to keep family and friends updated.
Inflammatory Breast Cancer Support
http://www.ibcsupport.org/
This organization provides links to the world’s largest support group for inflammatory breast cancer, as well as articles about inflammatory breast cancer and news of current events targeting this disease.
Sisters’ Network
http://www.sistersnetworkinc.org/
A national African American breast cancer survivorship group.
Sharsheret
http://www.sharsheret.org/
A national not-for-profit organization of cancer survivors targeting the unique challenges facing young Jewish American women with breast cancer.
Redenes en Accion
http://www.redesenaccion.org/
Redes En Acción, theNational Latino Cancer Research Network, is a National Cancer Institute-funded initiative to combat cancer among Latinos. Redes En Acción has built a nationwide network of community-based organizations, research institutions and government health agencies to promote training and research opportunities for Latino students and researchers, to generate research projects on key Latino cancer issues, and to support cancer awareness activities within the Latino community.
Planet Cancer
http://www.planetcancer.org
LIVESTRONG recognizes that young adults with cancer slip into a lonely no-man's land. Too old for the instant community of a children's hospital, they still don't fit in with the over-50 community that overwhelmingly populates adult cancer wards. Planet Cancer exists so that no young adult will have to endure such isolation again. Reach staff at 512 452 9010.
FoxChase Cancer Center
http://www.fccc.edu/
Two resources are available for parents with young children from the Fox Chase Cancer Center. They can be ordered over the telephone by calling: Marg Winters(215) 728-2668VIDEO: Talking About Your Cancer: A Parent's Guide to Helping Children CopeJOURNAL: Kids' Night Out: A Journal For Families Dealing With Cancer.
Writing through Cancer
http://www.writingthroughcancer.com
Writing Through Cancer features weekly writing prompts designed to encourage anyone living with cancer, another debilitating illness or difficult life circumstance, to write from that experience.
Kids Konnected
http://www.kidskonnected.org/
When a parent is diagnosed with cancer, they can turn to Kids Konnected for support. Kids Konnected's provides complimentary counseling, summer camps, bereavement workshops and cancer educational tools for children & teens with a parent with cancer, or have lost a parent to cancer. Kids Konnected was founded on the premise that when a parent gets cancer, the entire family is affected especially the children.
First Descents
http://www.firstdescents.org/
First Descents is committed to curing young adults of the emotional effects of cancer and empowering them to regain control of their lives by experiencing outdoor adventure therapy through kayaking, rock climbing and other outdoor adventure sports.
Fertile Hope
http://www.fertilehope.org/
Fertile Hope is a national LIVESTRONG initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
Hope for Two
http://www.hopefortwo.org/
Through Hope for Two, the Pregnant with Cancer Network offers free support for women diagnosed with cancer while pregnant. We connect women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis.
LIVESTRONG™ Young Adult Alliance
http://www.livestrong.org/What-We-Do/Our-Actions/Programs-Partnerships/LIVESTRONG-Young-Adult-Alliance
The LIVESTRONG Young Adult Alliance is a coalition of organizations with the goal to improve the survival rates and quality of life for young adults with cancer between the ages of 15 and 40. The Alliance is committed to promoting research and the investigation of the problem, serving as a voice for the issue and promoting effective solutions.
ReproTech, Ltd. Fertility Preservation Network
http://reprotech.com/cryostorage/fertility-preservation/about-fertility-preservation.html
ReproTech is the only company committed exclusively to long-term storage for fertility preservation. Since our inception over 20 years ago we've been developing the systems, infrastructure and network to be the leader in long term storage of embryo, oocyte and ovarian tissue as well as sperm. When it comes to keeping your future hopes secure, no other company even comes close to our single-minded commitment.
Rise Above It (RAI) http://www.raibenefit.org/
RAI provides financial assistance and clinical trials information to Adolescent and Young Adult (AYA) cancerpatients.
Ulman Cancer Fund for Young Adults http://www.ulmanfund.org/ A leading voice in the young adult cancer movement, the Ulman Cancer Fund is working at a grassroots level to support, educate, connect and empower young adult cancer survivors. The Fund enhances lives by supporting, educating and connecting young adults, and their loved ones, affected by cancer.
Senior Care at Care.com
http://www.care.com/senior-care-p1006.html Care.com is comprised of mothers, fathers, pet owners, sons, daughters, grandchildren, friends, and members of this online community, and we understand the difficulties you face when trying to find the right care and services for your families, yourself, and your home. This site matches people in need of specific services with providers in their community.
Lauren's Light
To empower families with young children, in which a parent has been diagnosed with cancer, through resources and information, to better address medical, psychological and administrative challenges.
National Asian Women's Health Organization
Founded in 1993, NAWHO has served as a powerful voice for the health of Asian American women and families. We have provided research and information about the health of Asian Americans to the public health field, as well as critically-needed health education to the Asian American community.
Imerman Angels
One-on-One Cancer support: Connecting Cancer Fighters, Survivors and Caregivers.
Imerman Angels carefully matches and individually pairs a person touched by cancer (a cancer fighter or survivor) with someone who has fought and survived the same type of cancer (a Mentor Angel). Cancer caregivers (spouses, parents, children and other family and friends of fighters) also receive 1-on-1 connections with other caregivers and survivors.
Cancer Resources for Young Adults
I’m too young for this! Cancer Foundation the voice of young adults. Founded by and for young adults affected by cancer, The I'm Too Young For This! Cancer Foundation is the nation's largest support community for the next generation of patients, survivors and caregivers between 15-40.
Cancer Really Sucks
Cancer Really Sucks is a website designed for teenagers by teenagers who have loved ones facing cancer. We hope to help you deal with your questions and emotions through the healthy and effective coping strategies found in our How to Deal section. Teens are also able to post stories about their situations, ask other teens questions, speak with professionals through live chat, and much more.
Clinical Trials
ClinicalTrials.gov
http://clinicaltrials.gov/
ClinicalTrials.gov is a registry of federally and privately supported clinical trials in the U.S. and elsewhere. It provides information about a trial's purpose, who may participate, locations, and phone numbers for more details.
CancerConsultants.com
http://www.cancerconsultants.com/
Free and confidential clinical trial matching and referral services.
Center Watch
http://www.centerwatch.com At Center Watch, our mission is to be the leading source of clinical trials information for both clinical research professionals and patients. To support our mission, we offer several professional, educational and informative services and resources from news and analysis on the industry to trial listings seeking study volunteers.
ECancerTrials.com
http://ecancertrials.com/
Free and confidential clinical trial matching and referral services.
National Cancer Institute - Clinical Trials http://www.cancer.gov/clinicaltrials/
Information on participating in clinical trials.
National Institutes of Health - ClinicalCenter and Clinical Trials Information
http://www.clinicaltrials.gov/
Information on current clinical trial research and participating in clinical trials.
Susan G. Komen for the Cure: Clinical Trials Fact Sheet http://ww5.komen.org/uploadedfiles/Content_Binaries/806-314a.pdf
Information about clinical trials.
Universityof Pittsburgh Medical Center(UPMC)-University of Pittsburgh Cancer Institute: Clinical Trials Information
http://www.upmccancercenters.com/trials/index.html
Interactive website includes information about clinical trials and personal stories.
Breast Cancer Trials
http://www.breastcancertrials.org/
BreastCancerTrials.org is a non-profit service that is dedicated to providing accurate information about breast cancer clinical trials.
ClinicalTrials.gov
http://www.clinicaltrials.gov/
ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world.
Coalition of Cancer Cooperative Groups http://www.cancertrialshelp.org/ The Coalition of Cancer Cooperative Groups is a nonprofit organization whose mission is to improve the quality of life and survival of cancer patients by increasing participation in cancer clinical trials.
EmergingMedNavigator
http://www.emergingmed.com/
EmergingMed’s Navigator service enables you to create a detailed profile to see if you match the eligibility requirements of more than 10,000 trials in the United States and Canada.
Chemotherapy
Descriptions of different kinds of chemotherapy agents, their side effects and effectiveness.
Chemotherapy
http://www.chemotherapy.com/
This site summarizes information related to treating cancer with chemotherapy, including side-effects of chemotherapy, interactions with other kinds of therapy, tracking progress, insurance and tax issues and links to cancer/chemotherapy sites.
Veins for Life
http://www.veins4life.com
What every chemotherapy patient should know about ports.
ChemoCare
http://www.chemocare.com
Chemo Care is your source for chemotherapy, chemotherapy side effectsand chemotherapy drug information.
Recipes Created to Cope with Side Effects of Chemo & Radiation.
http://www.emend.com/aprepitant/emend/consumer/tools/recipes/index.jsp
Enjoy delicious, easy-to-prepare recipes created especially for patients who are undergoing chemotherapy treatment and their families.
Complementary Therapy/ Alternative Therapy
Complementary Therapy: General Information and Search Tools for Scientific Studies
National Cancer Institute's Office of Cancer Complementary and Alternative Medicine (OCCAM)
http://www.cancer.gov/cam
Detailed information on CAM therapies for people living with cancer.
National Institutes of Health - National Center for Complementary and Alternative Medicine(NCCAM)
http://nccam.nih.gov/
Detailed information on complementary therapies from the National Institute of Health.
National Library of Medicine – Pubmed
http://www.pubmed.com
Search for scientific articles on complementary therapies.
Natural Standard
http://www.naturalstandard.com
Natural Standard was founded by healthcare providers and researchers to provide high-quality, evidence-based information about complementary and alternative therapies. Grades from A to F reflect the level of available scientific data for or against the use of each therapy for a specific medical condition.
Natural Medicines Comprehensive Medicine Database http://www.naturaldatabase.com The research and editorial team at Therapeutic Research Center put their drug information and literature evaluation skills to work to produce a highly objective, evidence-based description of natural medicines that is designed for healthcare professionals.
Annie Appleseed Project http://www.annieappleseedproject.org/ A symposium on 4th Annual Evidence-based Complementary & Alternative Cancer Therapies conference in West Palm Beach, FL. March 3-5, 2011.
Alicethenics
http://www.alicethenics.com
Information about a video containing exercises to increase freedom of movement after breast surgery.
Universityof Texas Center for Alternative Medicine
http://www.mdanderson.org/departments/cimer/ One of 11 research centers established by the National Center for Complementary and Alternative Medicine (formerly Office of Alternative Medicine, OAM) at the National Institutes of Health to evaluate alternative therapies.
LifeSpark Energy Therapy (Denver)http://www.lifesparknow.org/ LifeSpark provides supportive care that improves physical comfort and well-being through the Energy Partners program, where participants are matched with Reikiand Healing Touch providers for weekly energy therapy sessions.
re-org (Denver)
http://www.re-orgdenver.org/
re-org’smission is to connect cancer survivors with qualified and compassionate massage therapists in the Denver area to provide bodywork sessions free of charge in hopes of continuing the healing process from and beyond standard treatments.
SummitCancer Solutions (Denver)http://www.summitcancersolutions.org/ Summit Cancer Solutions, recently renamed the Cancer Fitness Institute, provides cancer survivors with affordable and empowering exercise programs in a healthy, positive, and non-intimidating environment. The organization provides training on its cancer exercise program and has created a small army of cancer-trained exercise professionals.
Complementary Therapies-Safety Information
National Institutes of Health Office of Dietary Supplements
http://ods.od.nih.gov
Information and safety alerts on dietary supplements.
U.S.Federal Trade Commission (FTC)
http://www.ftc.gov/bcp/menus/consumer/health.sh
Check for safety alerts on CAM therapies.
U.S.Federal Trade Commission’s (FTC) Cure-ious Resource Page http://www.ftc.gov/curious
Find information or file a report on false health product claims.
U.S.Food and Drug Administration (FDA)http://www.fda.gov/opacom/7alerts.html
Check for safety alerts on CAM therapies.
U.S.Food and Drug Administration's (FDA) Fake Cancer Cures http://www.fda.gov/cder/news/fakecancercures.htm
Check for scam treatments.
U.S. Food and Drug Administration's (FDA) Medwatch http://www.fda.gov/medwatch
Find drug and medical product information or file a report on a drug or medical product safety concern.
U.S.Pharmacopeia (USP)http://www.usp.org/USPVerified/dietarySupplements/
Check if a dietary supplement has been tested and USP verified for integrity, purity and safe manufacturing.
Complementary Therapies-Check the Licensing Status of a CAMProvider
American Association of Naturopathic Physicians
http://www.naturopathic.org/
This is the website for the national professional society representing licensed or licensable naturopathic physicians who are graduates of four-year, residential graduates programs.
American Massage Therapy Association
http://www.amtamassage.org/ The leading choice among massage therapists looking to establish themselves within the profession.
Federation of Chiropractic Licensing Boards
http://www.fclb.org/
The FCLB serves as a non-profit clearinghouse and forum for the discussion of important regulatory issues in the Chiropractic community.
National Certification Board for Therapeutic Massage and Bodywork http://www.ncbtmb.com/
The national certification Board for therapeutic massage and bodywork.
National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)
http://www.nccaom.org/find/index.html
Check whether an acupuncturist is licensed.
Clinical Trials
National Center for Complementary and Alternative Medicine http://nccam.nih.gov/research/clinicaltrials/
Information on and a listing of clinical trials of complementary therapies.
Find Integrated Health Care Organizations and Centers
Dirline
http://dirline.nlm.nih.gov
Find a local health care organization or center offering complementary/ integrative therapies.
Humor Therapy
Comedy Cures
http://www.comedycures.org
ComedyCures® is an award-winning national, 501(C)3 non-profit organization that brings joy, hope, laughter and therapeutic comedy programs to kids and grown-ups living with illness, trauma, depression and disabilities. Through live events and digital outreach, we entertain and educate patients, families and care-givers around the globe.
Jest Health
http://www.jesthealth.com/
A site founded and maintained by Patty Wooten, one of the founders of the modern therapeutic humor movement. Patty has worked with Norman Cousins, Dr. Patch Adamsand Dr. Madan Kataria, creator of Laughter Yoga.
Massage Therapy
A Caring Touch for Cancer
http://www.acaringtouchforcancer.com
A website created to learn about the latest evidence-based practices for safe and effective oncology massage for cancer patients.
Getting Quality Care
Administrators in Medicine-Association of State Medical Board Executive Directors
http://www.docboard.org/
Search for a licensed physician.
American Board of Medical Specialties (ABMS)http://www.abms.org/
Verify a physician is board certified.
American Cancer Society
http://www.cancer.org/
A large and respected site with information on care for people living with cancer.
American Medical Association – DoctorFinder
http://www.ama-assn.org/aps/amahg.htm
Search for a licensed physician.
American Society of Clincial Oncology (ASCO)http://www.cancer.net/
Search for an oncologist.
Health Care Choices
http://www.healthcarechoices.org
Search for information on many breast cancer care issues, including patient volume data and insurance coverage.
Joint Commission for the Accreditation of Healthcare Organizations
http://www.qualitycheck.org/consumer/searchQCR.aspx
Find a health care organization that meets the Commission's safety and quality standards.
Intercultural Cancer Council
http://iccnetwork.org/
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
National Cancer Institute (NCI)
http://www.cancer.gov/
The National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), which is one of 11 agencies that compose the Department of Health and Human Services (HHS).
National Center for Quality Assurance (NCQA)http://reportcard.ncqa.org/
Find the accreditation rating (based on quality standards) for a health management organization (HMO).
National Coalition for Cancer Survivorship (NCCS)http://www.canceradvocacy.org/
The NCCS is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors.
U.S.Food and Drug Administration (FDA)http://www.fda.gov/cdrh/mammography/certified.html
List of FDA-approved mammography facilities.
U.S.Food and Drug Administration (FDA) - Mammography Facility Adverse Event Report
http://www.fda.gov/cdrh/mammography/reports.html Check for reports of poor quality and any correcting actions for mammography centers.
Pain Control
American Pain Foundation.
http://www.painfoundation.org/
Founded in 1997, the American Pain Foundation (APF) is an independent nonprofit 501(c)3 organization that serves people affected by pain. APF stands up with people living with pain, caregivers, health care providers and allied organizations, working together to dismantle the barriers that impede access to quality pain care for all.
Nutrition and Cancer Treatment
Sites that explain the role of nutrition and diet in the treatment and/or prevention of cancer.
Recipes Created to Cope with Side Effects of Chemo & Radiation.
http://www.emend.com/aprepitant/emend/consumer/tools/recipes/index.jsp Enjoy delicious, easy-to-prepare recipes created especially for patients who are undergoing chemotherapy treatment and their families.
Cooking with Cancer
http://www.cookingwithcancer.org/
Cooking with Cancer is a program designed specifically for cancer care of those persons who are afflicted with cancer, care givers of the patients, and all of those who work in the healthcare industry. The content is recipes researched and tested on patients undergoing chemotherapy and radiation.
Managing Eating Problems during Treatment
http://www.cancer.gov/cancertopics/eatinghints/page3 Feelings can affect your appetite during treatment. This site provides information on how to cope with these feeling as they affect your nutrition.
